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Comments

Jennifer

You are awesome. I wish we lived in the same city/town.

-E

Hi- I have a 25 weeker who is now 18.5 months actual. I did want to share with you that you should google about a large, recent study (sorry I've forgotten all else) in which myriad developmental/premature and other specialists interviewed and assessed full term and former micropreemie adults. Statistically, they were completely unable to discern who was whom and the conclusion was that the micropreemies ended up "normal". The only difference found was in level of education completed- the micropreemies tended to have less/drop out out of college (motor planning issues?), but were not statistically different in ranges of IQ.
-E

christy everett

Thank you for saying that--I too bristle when I hear: And he's doing fine, now--said as a question but more as a directive because its easier for others if everything is OK. So thank you for putting these feelings into words.

I think the study refered to by E,was printed in the NY times; I have a copy of it at work. The study compared quality of life issues such as education, employment, marriage etc. And the outcomes were positive. But it did not address the extra work that our little survivors put into "catching up." The details we know as parents who love them--a hopeful end picture study though.

Keri

I have a friend who has a 15-month-old who was born early so this rant definitely helps me put things in her perspective. Thank you for sharing your feelings and I will be sure to be more conscious of what I say to mothers of preemies.

Kathy Ramsey

I loved your rant. I have a 26 week daughter who is now 13 months old. People just don't know what to say, so you kind of have to excuse them a little, but it's frustrating how pretty much nobody in the outside world understands prematurity at all. I think I might scream or worse if I hear one more story about someone's cousin who had a premature baby at 36 weeks, "and the baby is fine." ARRGGH!!!

Anyway, good wishes to you and I also wish we lived closer.

Allison

My son is a former micropreemie and he is now 13 years old. He is living proof that a former preemie can APPEAR normal but be radically different. He was a 28 weeker and 1 pound 9 oz when he was born, had no brain bleeds and no extraordinary care in the NICU. He left the NICU right before his due date at 4 pound 8 oz (I think.) He now is 13 and weighs 100 pounds. Amazing since he was on a feeding tube on and off until age 5. He is DIFFERENT. His brain does NOT think and operate the same as the other kids. This does NOT mean he is dumb - but he does process things differently. He does not do well in school and school is VERY difficult for him to master. He clearly understands 80 percent of what he is taught but he can't perform on a test. He can't adapt his knowledge in a test taking environment. He is a great reader, a terrible math student, a lover of science, a funny kid, very social, loves music, nice, obnoxious......in other words - he's an ordinary 13 year old rebel. BUT...he does not process information in the same manner as other people and it is difficult to access what struggles can be overcome with hard, hard work and which ones simply must be accepted as his best.

Allison

My son is a former micropreemie and he is now 13 years old. He is living proof that a former preemie can APPEAR normal but be radically different. He was a 28 weeker and 1 pound 9 oz when he was born, had no brain bleeds and no extraordinary care in the NICU. He left the NICU right before his due date at 4 pound 8 oz (I think.) He now is 13 and weighs 100 pounds. Amazing since he was on a feeding tube on and off until age 5. He is DIFFERENT. His brain does NOT think and operate the same as the other kids. This does NOT mean he is dumb - but he does process things differently. He does not do well in school and school is VERY difficult for him to master. He clearly understands 80 percent of what he is taught but he can't perform on a test. He can't adapt his knowledge in a test taking environment. He is a great reader, a terrible math student, a lover of science, a funny kid, very social, loves music, nice, obnoxious......in other words - he's an ordinary 13 year old rebel. BUT...he does not process information in the same manner as other people and it is difficult to access what struggles can be overcome with hard, hard work and which ones simply must be accepted as his best.

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